Freak Out Mode

So I think I have officially entered freak out mode. That is Zac and I's term for everything seems to be spinning quickly out of control...

I had been noticing that when Addie eats the area around her eyes has been getting a bluish tint to them and sometimes around her mouth..so we called the pediatrician and he had us come in yesterday. After an echocardiogram and an EKG we met with Dr. Mark and he thought everything looked really good as far as the exam of the heart. I don't understand all of the terminology but to make thing simple, the part where the oxygen leaves the heart and goes to the lungs is getting thicker (which was to be expected) so when Addie is under stress and the pressure changes, for example when she is eating, less oxygenated blood gets to her lungs..he actually expected Addie to be worse than she is as far as blue spells go..so he was actually somewhat pleased and not concerned. He gave us the option of puting her on a beta-blocker medicine to help realax the heart to help get more blood during those pressure change times. We decided that we didn't want to put her on meds yet as it isn't happening all the time and it isn't very bad when it does happen. (just makes for a worried mom and dad) Dr. Mark discussed moving the surgery date up from December to oct/november....which frankly scared the crapola out of me!

He said that 6 months is the goal, but the true indicator of how well she will handle the surgery is her weight, which is now over 10 pounds, so she would be considered low risk at this point...he said she will recover the same if we do the surgery now vs. in december so it wouldn't hurt her to move it up since she is starting to show problems with oxygen levels...

He also said that it would be good for us to do the surgery in oct or nov because of RSV season and it would be very very bad for Addie to get RSV prior to the surgery.....

We also had planned on only having to see him once a month until the surgery and now we'll be checking in once a week!!!!

SO........Dr. Mark is meeting with the surgeon at University of IA hospitals on Monday and then we'll see him on Thursday to discuss time frames and dates of surgery....

He wanted Addie to go ahead and get her two month shots this week so she'll have a couple of weeks to make sure she handles them OK prior to the surgery...

So today I took Addie to see Dr. Fox for her shots and that was not a fun experience.....seeing Addie cry like I have never seen her was NOT FUN!! To make matters worse she must be very sore from the shots because this afternoon she cried for almost an hour and I couldn't get her to calm down....finally she fell asleep after a bottle and some tylenol and is sleeping in her swing...we'll see how the night goes...I'm guessing I'll be operating on lack of sleep tomorrow...YEAH!

SO, needless to say, yesterday was a rough day, lots of crying, not ready to take my baby girl and let them operate..but know it's the best thing...as Zac keeps telling me, the sooner we get it over the sooner it will be behind us and Addie can continue being the blessing that she is!

If I could just ask for prayer that we decide the best date for Addie and that she stays healthy from now until she has healed from the surgery. Prayer that I won't lose my mind worrying about the procedure and reminding myself that God is in control and He will bring the peace that we all will need to get through the next couple of months.