Monday, February 16, 2009


Just got an update from a caringbridge site. A baby that was born in October with multiple complications, is going to be kept comfortable and let God's will be done. The doc's have tried everything thinking outside the box and heart just hurts for this family. The baby's name is Kaitlyn. Her mother, Kristina, was in my sisters class in high school...and coming from a very small town....everyone knows is just so hard. I just want to know why. Why can't God just heal her up and get her healthy. Let her parents take her home and enjoy their baby. I just don't understand. I just feel....deflated. Simply deflated.

Sorry I haven't been blogging much. Trying to figure out a routine with work and tyring to get caught up on life and get moving with getting Addie on the MR Waiver and all that fun stuff. Addie's been sick...bad cold, cough...finally got on an anti biotic on friday and she is doing much is wanting me to increase my hours, so now I am back to looking for an in home sitter that can do more close to full time care for her....we have a team of early intervention people coming to the house tomorrow including a psychologist that is supposed to be doing Addie IQ eval to see if we can get her on the MR Waiver because that would be such a GINORMOUS blessing for us to help with these medical bills!
Addie is getting dedicated this weekend so family is coming into town so that will be fun. I am hoping to get a post done by the end of this week with some fun stuff Addie is now doing...sitting up unassisted!! Laughing!! Rolling EVERYWHERE!! I can't contain this child anymore!

Until then, keep checking back, thanks for all the comments, I have recieved several blog awards I really need to get taken care of..THANK YOU!

and especially, please pray for baby Kaitlyn and her family.


  1. Praying for little Kaitlyn's family. Its always so hard to hear stories like that.

  2. Praying for Kaitlyn and her family, sometimes it's hard to understand God's plan...

  3. John 14:1, "Don't let your heart be troubled. Trust in God, trust also in Me." The sovereignty of God is the bedrock of faith during severe trials. Somehow, someway, with His ways and thoughts higher than mine, I know that He makes all things beautiful in His time. Your compassionate heart is so precious. I know God will show you ways to bring His comfort to this family as they have need (2 Cor. 1:3).

  4. I will say a prayer for Kaityln.. You need to fill me in about your job!!

  5. Erin, I felt compelled to comment, never having done so. I feel like I was lead to your blog for a greater purpose after ready about Kaitlyn. My wife and I walked down that same road with our daughter Madelyn beginning in August of 2006. We used every means possible from Iowa City to Mayo to find answers and finally had to come to terms with the fact that Maddie's days on this earth weren't up to us. We too are part of a small community and with out their help we wouldn't have survived the physical, let alone the mental stress of caring for Maddie 24/7. Maddie left us in January of '08 much to our surprise. She had been doing so well and I was sure that she was going to beat all the odds. Through it all I can truly say I have no regrets, and I would do it all again in a heart beat! I'm am so proud of her! She was an amazing gift. The thing is.... we thought we were the ones trying to "fix" her all along. When in reality, Maddie was performing miracles with every heart she touched. Material things have fallen by the wayside for things that truly matter and those every day ordinary moments don't get taken for granted anymore. We would never say we love any of our children more than another, but speaking from experience I can say that Maddie had, and will forever keep a very special place in our hearts. It's a place were only a special child with "special needs" can find. It's a place that only the parent of one of these angels can understand.


    P.S. If Kaitlyn's parents or yourself for that matter, need any help let me know...I'm a photographer. I've considered trying to get other photographers together to offer their services to families with special needs children. Recording Maddie's life was the hardest thing I've ever done, but those images will live on forever. If I can help others get through a difficult time with a kind word, strong shoulder, and a lasting memory, then the universe makes a little more sense.
    I haven't been able to bring myself to update and finish journaling Maddie's Blog( still to hard... mostly photos). But here's the website if you or Kaitlyn's parents would like meet our angel.

  6. Oh..I am so sorry to hear that. Her family is in our prayers.